FROM A PERSONAL AND PROFESSIONAL PERSPECTIVE
TODAY?
            Thomas L. Clouse, M.D.

                       Walking With Ataxia             

                           

TOMORROW!

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Walking With Ataxia
and
Cerebellar Degeneration

article

 Personal Information
 
   About Me
     My Personal Journey
     Contact Me

 
Basic Overview
 
   Concepts to understand
     Basic problems and
         solutions

    Alert & Danger items
    Points to remember

The nitty gritty (text)
 
   Why do I have to work
          so damn hard?

     You are your enemy.    
     Believe you can.
     Let's begin.
     To move, to walk.
     Stepping out.
     Not shuffling.
     It's not just walking.
     Remember when.
     The dance.

 The nitty gritty
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 Disorder info
  
 detailed information for
     Ataxia defined
     Spinocerebellar Atrophy
   
 Spinocerebellar Atrophy (2)
    Ataxia
            Identified Genetic

         & Biochemical Defects

     Multiple System Atrophy
     Friedreich's Ataxia
     Parkinson's Disease


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I am 26 years old and was diagnosed with Friedreich's ataxia when I was 19. I had the pleasure of working with Tom three months ago, in September.  To put it simply, it's all true.  This is priceless knowledge that anyone with mobility issues needs to be familiarized.  When Tom and I started I was walking very slowly and rigidly, with frequent and painful falls.  I am still walking slowly, as this is a learning process for certain, but I am less rigid, getting faster, and have considerably fewer falls. 
 
Tom and I had four sessions over three weeks, none exceeding two hours.  They consisted of a combination of learning the theory and philosophy behind the method, and practicing what he was showing me.  Since that time I have incorporated what I learned into my daily exercise and living practices, and I improve every day with no additional coaching.  I wouldn't say it's easy, but very doable.  
 
I have a hard time explaining to anyone the joy I get from these improvements.  There is a little party inside my head every time something clicks.  I recently jumped and landed it for the first time in years.  It was amazing.  And a couple days ago, I visited with a friend I see about once a year.  Right away he asked what I had been doing to improve my mobility.  He said it was night and day from the last time he saw me. 
 
On top of how great all of this is, Tom is a great person.  He gets it all. He knows the mental blockades we face, and how we can get through them.  Tom makes these difficult sessions fun.  I give my strongest endorsement.
 
If you want to hear more about anything, feel free to reply.
 
Happy New Year, and Godspeed,
 
John Cernosek
jcerno01@hotmail.com